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- Henry Ford post-ICU brain health clinic for COVID-19 patients opens
VIEW SELECTED LIBRARY MEDIA Name of Media: Henry Ford post-ICU brain health clinic for COVID-19 patients opens Author(s): DOTmed HealthCare Business News Publisher or Source: DOTmed HealthCare Business News Type of Media: Newspaper Article Media Originally for: General Public Country of Origin: United States of America (the) Primary Focus of Media: Post Intensive Care Syndrome (PICS) COVID-19 Related: Yes Description: Henry Ford Health System has established a specialty clinic to treat COVID-19 and other patients who have lingering cognitive, emotional and mental health conditions after being hospitalized in the intensive care unit. As an increasing number of COVID-19 patients recover and are discharged from the hospital, it is anticipated that well into the future, many will need help getting back to their normal physical and mental functioning. To view the PDF, Article, Photo, or Chart, Click Icon: To view the attached Video media file, Click Icon: PostICU, Inc's library staff reviewed this copyrighted material contained in the library and reasonably believes that its inclusion in our library complies with the "Fair Use Doctrine" because: (1) our library's is for nonprofit and educational purposes; (2) the nature of the copyrighted work is related to our mission; (3) the amount and substantiality of the portion used in relation to the copyrighted work as a whole is fair and reasonable; and (4) the potential market for or value of the copyrighted work will if impacted, should be enhanced, by its presence in our library. Back to Search Page
PostICU Library Index
- Long Covid isn’t as unique as we thought
VIEW SELECTED LIBRARY MEDIA Name of Media: Long Covid isn’t as unique as we thought Author(s): Julia Belluz Publisher or Source: Vox Type of Media: Magazine Article Media Originally for: General Public Country of Origin: United States of America (the) Primary Focus of Media: Post Intensive Care Syndrome (PICS) COVID-19 Related: Yes Description: The dominant narrative about long Covid has been that it’s a uniquely perplexing feature of Covid-19. Reports of “Covid brain fog” or “Covid dementia,” for example, suggest a disturbing and extraordinary ability of the coronavirus to destroy the lives of survivors. Even a year later, some patients are still struggling to return to work or have their illness recognized, let alone access disability benefits. While there’s no doubt long Covid is a real condition worthy of diagnosis and treatment, “this isn’t unique to Covid,” Akiko Iwasaki, an immunologist at the Yale School of Medicine, said. Covid-19 appears to be one of many infections, from Ebola to strep throat, that can give rise to stubbornly persistent symptoms in an unlucky subset of patients. “If Covid didn’t cause chronic symptoms to occur in some people,” PolyBio Research Foundation microbiologist Amy Proal told Vox, “it would be the only virus that didn’t do that.” Even with growing awareness about long Covid, patients with chronic “medically unexplained” symptoms — that don’t correspond to problematic blood tests or imaging — are still too often minimized and dismissed by health professionals. It’s a frustrating blind spot in health care, but one that can’t be as easily ignored with so many new patients entering this category, said Megan Hosey, assistant professor at the Johns Hopkins Department of Physical Medicine and Rehabilitation. “It has always been [and] is the case that patients who get sick experience high levels of symptoms like those described by long-Covid patients,” she said. “We have just done a terrible job of acknowledging [and] treating them.” To view the PDF, Article, Photo, or Chart, Click Icon: To view the attached Video media file, Click Icon: PostICU, Inc's library staff reviewed this copyrighted material contained in the library and reasonably believes that its inclusion in our library complies with the "Fair Use Doctrine" because: (1) our library's is for nonprofit and educational purposes; (2) the nature of the copyrighted work is related to our mission; (3) the amount and substantiality of the portion used in relation to the copyrighted work as a whole is fair and reasonable; and (4) the potential market for or value of the copyrighted work will if impacted, should be enhanced, by its presence in our library. Back to Search Page
- #3: PICS Research Booms
Every year, more than 6 million patients are discharged from intensive care units (ICUs) in the United States (U.S.). At least one-third and as many as 80% experience a range of physical, cognitive and mental impairments associated with post-intensive care syndrome (PICS). Many of these patients still need care years after leaving the ICU. These numbers suggest that millions of people are currently afflicted with PICS, many with long term consequences. Moreover, thousands of survivors of the COVID-19 pandemic are facing symptoms similar to PICS long after their “recoveries” are thought to be complete. Given its pervasiveness and severity, what is the medical profession doing to identify, understand and treat PICS? PostICU.org has been tracking medical research journals to answer this question. For several years, we have been searching a number of on-line databases of peer-reviewed medical journals worldwide to find relevant articles. One of these, PubMed, has proven to be a particularly accessible database for the nonprofessional investigator. Founded in 1996, PubMed is a free resource supporting the search and retrieval of biomedical and life sciences literature. PubMed is maintained by the U.S. National Institutes of Health (NIH). Its database contains more than 30 million peer-reviewed journal citations. The full text of roughly one-quarter of these articles are open access publications available to the public at no charge. In 2012, less than two years after the seminal Society of Critical Care Medicine meeting that first defined PICS, the first four articles appeared in the PubMed database,. Since then, PICS has become a steady and now rapidly growing focus of medical research. This is shown in the following graph. A small handful of medical journal articles about PICS were published over the years from 2012 to 2015, after which the numbers began to shoot up dramatically. New PICS articles added to the PubMed database jumped from five in 2015 to 23 in 2016. In the last four years, the annual total has nearly quadrupled to an estimated 90 articles in 2020. In total, the PubMed database included 209 PICS articles as of November 1, 2020. Over 40% have been published in the last year. Most of the early articles tried to quantify the number of post-ICU patients afflicted with PICS and the distribution of various physical, mental and cognitive impairments among them. Many also focused on the expansion of protocols used by ICU nurses to include new and enhanced procedures to reduce delirium, enhance mobility and avoid other likely precursors of PICS. As the PICS knowledge base expanded, the medical community began to propose and test specific strategies to treat PICS patients in randomized controlled trials.These include establishment of post-ICU recovery centers specifically designed to help PICS patients.Other strategies include creating a network of peer support groups, including on-line groups, where PICS sufferers can talk freely among themselves.Another idea encourages ICU patients to maintain a diary of their experiences, worries and fears, with contributions by their families and ICU nurses, and continuing during post-discharge recovery.These topics will be examined more closely in future Jim’s Blogs.
- #2: SCCM Builds a Foundation
The Society of Critical Care Medicine (SCCM) did a lot of the heavy lifting in designating post-intensive care syndrome (PICS) as a distinct medical condition. This makes sense. Every PICS sufferer was once critically ill and treated in a hospital intensive care unit (ICU). SCCM continued to lead after the 2010 inaugural PICS meeting, helping to build a place for PICS in the medical hierarchy. Early work was done by three task forces established during the initial meeting. They met periodically and presented reports at the Second PICS Stakeholders Meeting, also organized by SCCM, and held on September 24 and 25, 2012. After the presentations by the three task groups, attendees incorporated their respective recommendations into a single PICS Action Plan to guide future work. By then, the Awareness and Education Task Group had already published an information brochure and several videos on PICS. It had established an internet site about PICS called MyICUcare.com and it inserted a PICS definition into Wikipedia’s encyclopedia. With input from ICU survivors with PICS, an earlier SCCM brochure on leaving the ICU was modified to include a checklist of questions to identify when symptoms should be reported for follow-up medical care. Given that patients themselves may be unable to process complex information at their ICU discharge, the brochure was designed as much to help family members as the patients themselves. The Barriers Task Group recommended promoting the concept of “functional reconciliation,” making formal comparisons of a patient’s functional capabilities before hospitalization with their post-ICU status. This new concept included a checklist of physical, cognitive and mental health conditions and included case managers to ease transition of care and referral to appropriate care providers. Topics studied by the Research Task Group included partnering with other national organizations working on PICS, such as the Critical Care Societies Collaborative and the National Institutes of Health (NIH). The group also recommended seeking funding sources, including NIH institutes, the Agency for Healthcare Research and Quality, the Patient Centered Outcomes Research Institute, and various foundations. The Research Task Group also identified topics where further evidence was required to support a sound understanding of patient recovery from PICS. The group urged future research strategies to include a patient-centered focus, and include long-term outcome measures into studies. Development of datasets of patient-level data would benefit both research and practice evaluations, it concluded. At the second meeting in 2012, the number of stakeholder groups grew to 25, from 15 in 2010, and the total number of attendees expanded from 31 to 40. Like the early meeting, most attendees were medical professionals. Importantly, two ICU survivors with PICS were invited to attend the second meeting as patient advocates. This was one of the first and, unfortunately, still rare inclusions of PICS patients in medical decisionmaking. A fuller discussion of the SCCM Second Stakeholders Conference on PICS appears in an article published in Critical Care Medicine in December 2014 entitled “Exploring the Scope of Post-Intensive Care Syndrome Therapy and Care: Engagement of Non-Critical Care Providers and Survivors in a Second Stakeholders Meeting.”The article is included in the PostICU library on this website.
- #1: PICS Launched in 2010
In late September 2010, a two-day meeting was held in Chicago, Illinois, to discuss the long-term consequences of extended intensive care unit (ICU) hospital stays after critical illnesses. The meeting was convened by the Society of Critical Care Medicine (SCCM), a leading international trade organization currently representing 16,000 physicians and nurses. In attendance were 31 medical specialists from 15 stakeholder groups invited by the SCCM. No post-ICU patients were included. During the meeting, the stakeholders approved a new medical term, post-intensive care syndrome (PICS), to describe “new or worsening problems in physical, cognitive or mental health status arising after a critical illness and persisting beyond acute care hospitalization.” This diagnostic term was created to help doctors determine what is “wrong” with patients who survive critical illness, but don’t recover as fully as expected. PICS itself was not invented at the Chicago meeting, of course. Patients who “didn’t make it all the way back” from severe medical crises were known for decades, but their symptoms were commonly ignored or even ridiculed. In the face of decades of stunning medical advances in saving lives, this collateral damage may have seemed a reasonable price to pay. No more. The SCCM 2010 meeting launched a feverous quest to learn more about the factors contributing to the emergence of PICS, to enhance knowledge of the full range of impairments affecting the quality of life of its sufferers, and to develop treatment protocols to promote recovery, if not a cure. PICS sufferers are now recognized by the medical community as needing and worthy of help with the health problems they endure, but did not create. This recognition may be just in time to help in the post-COVID era, where thousands of survivors of the virus are already experiencing persistent impairments. These unfortunates are termed “long haulers,” but their symptoms seem consistent with those of PICS. Hopefully, the decade of work so far to counter PICS, will help jump-start rapid development of treatments for COVID long haulers. The events in Chicago were reported in a March 2012 medical journal article, “Improving Long Term Outcomes after Discharge from Intensive Care: Report from a Stakeholders' Conference.” The article was co-authored by a long list of doctors led Dale M. Needham from Johns Hopkins University in Baltimore. It was published in Critical Care Medicine and is included in the PostICU library on this website.
- PICS Expert Consultation
Meet with one of our non-medical professionals to ask any questions about PICS, available services, our research library, articles and other materials of interest, PICS Clinics, etc.
- PICS Group Discussion
Opportunity to chat with other former ICU patients and their family members about ICU and post ICU experiences.
- If you have been a patient in a ICU, were you (or your caregiver or a family member) informed about PICS during or prior to your discharge?
This question goes to the heart of PostICU's Members greatest concern: How do people experiencing PICS symptoms learn that that PICS is the cause of their symptoms? Is it because they were informed about PICS in the hospital? Or their PCPs? Or a medical specialist of some sort? OR DO THEY NEVER FIND OUT?
- Welcome to the PostICU, Inc. Members Only Forum
Please feel free to share your thoughts, ask questions, share your story. The PostICU Forum is the place to be to learn about PICS and to help us make plans to provide assistance to people experiencing PICS. Down the road, we hope to find a place in the critical care arena to add our recommendation for ways to improve the likely outcome for people who spend time in the ICU. We believe that by working with critical care professionals, we can find a number of ways to better educate ICU patients before they are discharged about PICS. We also believe that there would be a long term cost-benefit and health benefit if hospitals made arrangements to add Post ICU Physicians & Nurses to their aftercare programs, to follow up with discharged ICU patients. What are your thoughts on this subject?
PostICU Library Policy & Compliance Statement
PostICU, Inc's library staff reviewed this copyrighted material contained in the library and reasonably believes that its inclusion in our library complies with the "Fair Use Doctrine" because: (1) our library's is for nonprofit and educational purposes; (2) the nature of the copyrighted work is related to our mission; (3) the amount and substantiality of the portion used in relation to the copyrighted work as a whole is fair and reasonable; and (4) the potential market for or value of the copyrighted work will if impacted, should be enhanced, by its presence in our library.