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PostICU, Inc. is a nonprofit agency founded to educate former ICU patients about post intensive care syndrome. Learn more about PostICU syndrome by visiting our website or calling 833.PostICU. MORE ABOUT PICS. Want to truly understand PICS through the eyes of a person experiencing it? Watch superb video. LOOKING AT PICS SYMPTOMS ICU-acquired weakness ICU-acquired weakness (ICUAW) is muscle weakness that develops during an ICU stay. This is a common problem of being critically ill and occurs in: 33% of all patients on ventilators 50% of all patients admitted with severe infection, which is known as sepsis Up to 50% of patients who stay in the ICU for at least one week Patients who develop ICUAW may take more than a year to recover fully. ICUAW makes the activities of daily living difficult, including grooming, dressing, feeding, bathing, and walking. ICUAW may greatly delay the patient from doing activities in the way he or she used to do them. Cognitive or brain dysfunction This refers to problems connected with remembering, paying attention, solving problems, and organizing and working on complex tasks. After leaving the ICU, 30% to 80% of patients may have these kinds of problems. Some people improve during the first year after discharge from the hospital; other people may never fully recover. Cognitive dysfunction may affect whether the patient can return to work, balance a checkbook, or perform other tasks that involve organization and concentration. Other mental health problems Critically ill patients may develop problems with falling or staying asleep. They may have nightmares and unwanted memories. Reminders of their illness may produce intense feelings or strong, clear images in their mind. Their reactions to these feelings may be physical or emotional. Patients may also feel depressed and anxious, and may have symptoms of post-traumatic stress disorder (PTSD). These include having nightmares and unwanted memories, feeling “keyed up,” and wanting to avoid thinking or talking about their stay in the ICU. PICS + RECOVERY TIME How Does PICS Affect Recovery? Up to 50% of patients may return to work within the first year, but some may not be able to return to the jobs they had before their illness. Patients may need help with activities after leaving the hospital. HOW CAN FAMILY HELP PICS SUFFERERS? What Can Family Do to Minimize PICS? If you are a family member, you may be able to minimize PICS by helping your critically ill family member stay “oriented”: Talk about familiar things, people, and events. Talk about the day, date, and time. Bring in favorite pictures and items from home. Read aloud at the bedside. You can also keep a diary or journal and later review it with the care team and your family member. This may help your family member understand what happened, clear up some memories, and reduce stress. Lastly, you can ask the care team to teach you how to help with your family member’s bedside exercises. Exercises prevent weakness by keeping the joints and muscles active. Patients should move their bodies as soon as they can and work with physical therapists, even while using a ventilator. Moving is also good for the brain. LOOKING AT PICS-F, AFFECTS ON FORMER ICU PATIENTS' FAMILIES How Does PICS Affect Family? Critical illness is a family crisis. Feeling worried and confused can cause family members to stop tending to their own health. The care team may ask the family to make decisions about important, sometimes overwhelming matters. Because of this, 30% of family members may experience their own mental health problems, such as depression, anxiety, and PTSD. How Can Family Lower Their Chances of Developing PICS? First and foremost, if you are a family member, take care of yourself. This cannot be stressed enough. Meeting your critically ill family member’s needs is a major part of care, but your needs are just as important. If you are well, you have the physical and emotional strength to support your family member and feel good about it. Eat well, get as much rest as possible, exercise, and seek support. The hospital has social workers, case managers, and pastoral caregivers who can help. Take time to understand your family member’s illness and treatment options. Having this information will help you make decisions, feel confident about the decisions you make, and reduce stress. Ask questions, ask to meet with the care team, and keep a journal. Review the journal with a member of the care team whom you trust to make sense of what has happened and how you are responding to it. These actions can help you and the care team recognize and respect your family member’s wishes, values, and preferences as much as possible. Participating in inpatient care is another way to support your family member and reduce stress. The bedside staff can suggest activities for those who want to be involved. WHAT TO DO POSTICU? If you are an ICU patient, the care team may diagnose you with PICS or determine you are at risk for developing it. They may refer you to other caregivers for support services after you leave the ICU. If not, these are possible warning signs: Muscle weakness or problems with balance Problems with thinking and memory Severe anxiety Depression Nightmares If you notice any of these problems, please ask your primary care doctor or caregiver to refer you to one of these specialists: Occupational therapist : A caregiver who helps the patient relearn life skills, such as the activities of daily living and the use of memory (for example, grooming, feeding, dressing, balancing a checkbook). Physiatrist : A medical doctor who is specially trained to diagnose and treat injuries to the muscles, bones, tissues and nervous system. The physiatrist can prescribe medication. He or she teaches patients exercises to improve what they can do and gives patients devices to help them adapt to what they cannot do. Physical therapist : A caregiver who helps restore the patient’s ability to function and be independent after injuries to the muscles, bones, tissues and nervous system. Psychiatrist : A medical doctor who is specially trained to diagnose and treat mental health problems. The psychiatrist can prescribe medication. Psychologist : An advanced degree professional who can diagnose and treat problems with thoughts, emotions and coping skills. The psychologist tests and assesses behavior and mental health. Speech therapist : A caregiver who helps the patient with problems related to memory, attention and swallowing. The speech therapist also helps the patient learn to speak again, if necessary. SCCM RECOMMENDED VIDEOS A Patient’s Perspective on Post-intensive Care Syndrome Video : This YouTube video, created by Johns Hopkins University, helps you understand how patients regain health after an ICU stay. The patient in the video is a 39-year-old man. He recalls his first year after intensive care, including his delayed return to work. He also describes health challenges that some patients face with their body, thoughts, feelings or mind during recovery after the ICU stay. These health issues, known as post-intensive care syndrome, or PICS, arise during the patients’ ICU stay. Being more informed about post-ICU health issues can help you talk to your doctor and nurse about them. Delirium in the ICU Video : This YouTube video, created by Johns Hopkins University, helps you understand the confused thinking, or delirium, that affects many patients during their stay in an ICU. The patient in the video is a 60-year-old woman who was admitted to the hospital with kidney problems. After her admission, she developed a severe infection and breathing problems. These problems required her to be in the ICU for 11 days on a machine that helped her breathe (mechanical ventilator). After one month in the hospital, she returned home. The patient recalls her delirium in the ICU and its effect on her. She describes the confusing, sometimes scary misperceptions and hallucinations that commonly occur. She also stresses the need to acknowledge these experiences, even though they were not real-life events. Finally, she suggests ways in which the family can help a patient during and after his or her delirium. After watching these videos, you may have questions or concerns about PICS and delirium. If so, talk to your doctor, nurse or care team. They know you best and can help you through these conditions. SCCM Publication Date: 2013 PostICU thanks the SCCM for the valuable information contained on this page, and the p age creators: Judy E. Davidson, RN, CNS, DNP, FCCM; Ramona O. Hopkins, PhD; Deborah Louis, RN, MSN; Theodore J. Iwashyna, MD, PhD

The psychologist tests and assesses behavior and mental health. Speech therapist: A caregiver who helps the patient with problems related to memory ... POSTICU PICS SELF TEST 4.1 This Test Should Take Approximately 5-7 Minutes

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Want to find out What is Post-Intensive Care Syndrome? PICS is a collection of physical, mental and emotional symptoms that remain months or years after an illness. Read more today! WHAT IS PICS? What is post-intensive care syndrome (PICS)? Patients recovering from critical illness may experience a combination of cognitive, psychological, and physical signs and symptoms that remain for months to many years after critical illness, known as post-intensive care syndrome (PICS). The common symptoms of PICS include: Physical Symptoms Breathing difficulties Weakness and balance problems Neuromuscular impairments Pain or numbness Cognitive Symptoms Memory difficulties Concentration difficulties Slowed mental processing Trouble carrying out tasks Psychological Symptoms Anxiety Depression PTSD Sleep problems

Learn more about our Founder Rob Rainer at Post ICU, Inc. Rob has personal experience dealing with Post Intensive Care Syndrome after spending 2 months with a rare and usually deadly strain of Pneumonia. Find out more. POSTICU FOUNDER Rob Rainer Biography In 2015, Rob Rainer, then 54, spent 2 months, including 4 weeks on a ventilator in a coma, hospitalized with a rare and usually deadly strain of pneumonia. During much of this time, he lived in a horrifying delirium of hallucinations and nightmares, which forced the ICU staff to restrain him and ICU staff safe. Rob had 3 surgeries to repair herniated disks in his neck and lower back, which were damaged while he struggled against his restraints. He left the hospital 75 pounds lighter, with scarred lungs, cataracts, hearing loss, thyroid cancer, and a full range of PICS symptoms including the repercussions of delirium + . A few months after leaving the ICU, Rob tried to return to work, eager to resume his old life. But as he sat down at his desk, the former hard-driving, multitasker found he couldn’t stay on track. Phone conversations left him overwhelmed, and he was baffled by a computer program he himself had developed. CLICK HERE TO CHECK OUT RAINER'S SPIN, A WORK IN PROGRESS... A REVIEW OF THE HISTORY OF PICS Forced to abandon his 30-year successful, law practice, and business career+ , Rob now volunteers at 2 non-profits that he and his wife formed, PostICU, Inc. and North American Help Services Alliance, Inc. Rob is a professor at an International University, he teaches in both the MBA and DBA program. Rob is on sabbatical. ++ . Rob earned a BA from Brandeis University in Philosophy, and a law degree from Suffolk University Law School. He and his wife, Noelle, a psychologist, live in Hudson, New Hampshire. + Boston Globe, April 25, 2020, Surviving ventilators, only to find lives diminished, Amid widespread use for coronavirus, breathing machines’ ++ Rainer was the recipient of a 2020 ACBSP Teaching Excellence Award PostICU as of July 2021 is a division of North American Help Services Alliance, Inc. a 501(c)3 nonprofit in good standing and based in New Hampshire. Boston Globe Article Rainer ACBSP 2020 Teaching Excellence Award

Welcome to the Post-ICU recovery hub · Helping you with your recovery after leaving ICU · Understanding your time in ICU · We value your feedback · Contact us Home About PostICU PICS Resources PostICU Store Search PostICU Library Contact Us More Home About PostICU PICS Resources PostICU Store Search PostICU Library Contact Us More Is Post Intensive Care Syndrome a Major International Health Care Crisis ? The FACTS speak for themselves. FACT Every year, tens of millions of people are admitted to intensive care units around the world. FACT More than 60% percent of these ICU patients WILL experience PICS. FACT Only a handful of these patients will be informed that they have PICS. FACT There exist only 21 PICS Clinics in the Western Hemisphere. Enter the Site Now * Click here for a detailed definition of PICS. Visit Our Sister Websites MyICU.org Guidance for family & friends when a loved one is in the ICU. Click here . AftertheICU.org The Brigham & Women's Hospital PICS Clinic One of the best critical care hospitals in the world is taking on PICS. Click here .

Brigham & Women's Hospital Post Intensive Care Clinic. Have you or a loved one survived a critical illness and are wondering why things aren't quite right? Contact the ICU Recovery Clinic today! Brigham & Women's Hospital, Post ICU Clinic Have you or your loved one survived a critical illness and wondered why things aren’t quite right? We might be able to help. The ICU Recovery Program is a partnership of patients, families, researchers, and healthcare providers. Our mission is to improve the quality of life of those still recovering from the effects of a critical illness. Brigham & Women's ICU Recovery Clinic All patients who were in an ICU on a ventilator, or had sepsis or delirium could benefit from an appointment at our ICU survivor’s clinic. Many patients have lingering issues such as memory loss, depression, anxiety, insomnia, physical limitations, and difficulty returning “back to normal”. To make an appointment: call 617-732-6770 and ask for a Thursday morning appointment with Drs. Gerald Weinhouse and Daniela Lamas . What ICU Recovery Clinic can do? • Psychiatric screening and referral • Neuro-cognitive screening and referral • Medication review • Social services involvement Peer Support Connect and learn from others with shared experience. We are one of 6 centers nationwide with informational support groups sponsored by the Society of Critical Care Medicine. Dr. Weinhouse, Dr. Lamas, and Their Team are Premier Experts in the Field of PICS Treatment Countless articles, research studies, and books about Post Intensive Care Syndrome have been written by the Team at Brigham & Women's Hospital. Their website, aftertheicu.org, is one of the most visited websites about PICS in the world! From personal experience, one of the founders of PostICU, Inc., Rob Rainer, happily attests to the fact that but for the intervention of Dr. Weinhouse and Lamas in 2015, he probably not would be alive today . For attentive, responsible, thorough medical care, call After the ICU Team at Brigham & Women's Hospital. Call 617-732-6770 You Can Stop Humming Now Click on any of these links to purchase this highly rated book Amazon.com Barnes & Nobel Indiebound Matt McCarthy, Special to USA TODAY Published, 11:06 a.m. ET March 29, 2018: Doctors are a tough crowd. When one of our own writes a book, we’re inherently skeptical and, if I’m being honest, a touch envious. What can this physician have to say, we wonder, that I don’t already know? As Daniela Lamas reveals in her dazzling new book, You Can Stop Humming Now (Little, Brown, 256 pp., ★★★½ out of four), the answer becomes clear after just a few pages: quite a bit. Dr. Lamas begins her book by letting us in on a secret: during residency training, she was known as the one who wouldn’t let patients die. Regardless of the prognosis, she would not accept death as a potential outcome for those under her care. I can vouch for this. Lamas and I were part of the same intern class at Columbia-Presbyterian Medical Center a decade ago, and she quickly established herself as a uniquely gifted and devoted physician with a talent for writing. Back then, she wrote pieces that challenged the status quo, pushing the boundaries of what doctors-in-training could (and should) write about. Her work irked hospital administrators, but it delighted the rest of us. Lamas is now an attending physician in Boston, caring for critically ill patients in the intensive care unit of the hospital where she was born. She has a decade of medical practice under her belt, and in her new book, she effortlessly captures the rhythm and mayhem of modern medicine. Author and physician Daniela Lamas. This slender volume is not a typical medical memoir, however; we’re not here to learn about the author's development as a physician. The focus is on others, those who have survived the intensive care unit and are struggling to cope with the challenges of life with chronic critical illness. Intrigued by their stories, Lamas starts a clinic to help them navigate their new lives. It’s a provocative idea, but she initially has difficulty attracting patients. “These were people with terrifying memories of what had happened to them in the hospital, people who might not be willing to return...” Some were understandably scared of hospitals while others had new memory deficits and simply couldn’t remember to come back. Eventually, the patients trickle in, and together they work through the challenges of adjusting to daily life. One patient is afraid to be alone with his young son, worried that he could die and leave his child without a father; another is too anxious to cook, fearing she will forget to turn the oven off. Lamas helps bridge “the chasm that separated what happened in the intensive care unit from what came afterward.” She explains to patients that they’re confronting a new entity in medicine: post-intensive care syndrome. “We gave our patients a name and a diagnosis,” she writes, “and with that, I think, a degree of reassurance and perhaps even hope.” Warmth and humanity radiate from every page. Lamas and her team are doing something innovative, providing a lifeline to patients we tend not to think about: those who should feel fortunate just to be alive. But these men and women have very real problems and conditions that go under-reported and untreated. The patients in this book have something important to say, and so does the author. We should all be listening. Two Radio Segments Featuring After the ICU Team Together, Boston Radio Show Host Arun Rath found out more about the physical, mental. and emotional recovery for coronavirus patients after leaving the ICU. Then, he checked-in on how Boston is preparing to recover from this pandemic. Finally, we heard how a Cape Cod children's clothing manufacturer is making cloth masks for their customers and frontline workers. Click Here to Listen to the Radio Show Daniela Lamas , critical care physician, and Stacey Salamon , social worker (from Brigham & Women's After the ICU Team — 2:20 Boston Mayor Marty Walsh — 21:48 Brian Gonye — 45:40 Jack Lepiarz Reporter and Anchor Click Here to Listen to For COVID-19 Patients Who Survive The ICU, A New Struggle Awaits For those COVID-19 patients who go on a ventilator and survive, the struggle doesn’t necessarily end once they’ve been discharged from the hospital. Research suggests that those days or weeks under sedation have an impact on the mind and body that can be life-changing. Stacey Salomon , a social worker in the intensive care unit and critical illness recovery program at Brigham and Women’s Hospital in Boston, joined WBUR to discuss the problems patients can face once they leave critical care and what can be done about it. This segment aired on April 29, 2020.

Covid-19 & Pics | PostICU, Inc. | United States. Connection between post intensive care syndrome and COVID-19. PICS & COVID-19 "A Crisis in a Crisis" The PostICU Library Has "Up To The Minute" Media Regarding the Evolving Area of COVID-19 & PICS PostICU is tracking the most recent articles and research regarding the dynamic relationship between COVID-19 and PICS. Please join us in our search by sharing materials that you have come across in your research of this growing area of interest by submitting what you find by clicking here . CLICK HERE FOR HOT OFF OF THE PRESS PICS & COVID-19 NEWS PICS - COVID-19 Library

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If you are an ICU patient or family member, this guide helps you understand the health problems known as post-intensive care syndrome, or PICS, so you know what ... Missing: Rob's ‎| Show results with: Rob's Rainer's Spin on PICS Click to Read Full Article The History of Post Intensive Care Syndrome ewe sea eye post Amazing advances in medical care have taken place over a very short period of history. In the past one hundred years, when compared to the thousands of preceding years of "man & medicine" preceding, th we can clearly see how PICS came to be. An incredible uptick in people surviving injuries and illnesses that not long ago were sure to be fatal, combined with the innovation of "special wards" for critically ill patients over the past 70 years, has resulted in tens of millions of patients spending time in intensive care units in hospitals around the world. Medical miracles, life-saving surgeries, and one devastating albeit unanticipated compromise - Post Intensive Care Syndrome. . HISTORICAL TIMELINE 1952, the concept of a "special ward" for critically ill patients begins to take form. Eureka! By George, I think we've got it! In 1952, Dr. Bjorn Ibsen, struck gold. He placed patients in a "special ward," with equipment and specialists at the ready to attend to severe respiratory conditions, lives were saved that would have been lost, if the patients remained in the hosptial's general wards. "All patients with respiratory problems were collected in a special department, where they were under constant observation by a team, consisting of the epidemiologist, the ear, nose and throat surgeon, and the anxsthetist, all working with help from an excellent and capable laboratory. Later on radiologists and physiotherapists also helped...

f you are an ICU patient or family member, this guide helps you understand the health problems known as post-intensive care syndrome, or PICS, so you know what ... GET INVOLVED TODAY! We Need Your Help @ PostICU . 1. Join PostICU 2. Share Your Post ICU Story 3. Add Media to Our PICS Library 4. Donate to PostICU 5. Download the PostICU App MAKE AN IMPACT. How can you help? Join PostICU for Free Volunteer for PostICU Make a Donation Assist with Outreach Thanks for submitting! SUBMIT