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Name of Media:

Death, bereavement and randomised controlled trials (BRACELET): a methodological study of policy and practice in neonatal and paediatric intensive care trials

Author(s):

Claire Snowdon, Peter Brocklehurst, Robert Tasker, Martin Ward Platt, Sheila Harvey and Diana Elbourne

Publisher or Source:

NIHR Journals Library – Health Technology Assessment

Type of Media:

Medical Journal

Media Originally for:

Critical Care Physicians

Country of Origin:

United Kingdom of Great Britain and Northern Ireland (the)

Primary Focus of Media:

Pre-Use of PICS Designation

COVID-19 Related:

No

Description:

Background: Researchers have seldom included bereaved parents in studies of participants’ views of
randomised controlled trials (RCTs); hence our understanding of the impact of trials is based on skewed
and incomplete samples. Little is known about parental experiences of the death of a child subsequent to
their enrollment in a trial or of provision made for this experience by clinicians and trial teams. The
Bereavement and RAndomised ControlLEd Trials (BRACELET) study was funded to consider bereavement in
the context of paediatric intensive care (PIC) and neonatal intensive care (NIC) trials.

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